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loss of bladder sensation...help

loss of bladder sensation...help

Postby coffeebreak » Sat Nov 06, 2010 9:32 pm

i have completely lost the feeling to my bladder, im drinking a ton of water which you would think would send me running however i have no urdge to go to the bathroom i have to remind myself to go in which i dont think of it during the day and come night when i go i cant believe the amount im go natually after drinking all that water and only going once at night, i literally have no sensation to my bladder and this kinda worries me, anyone else have or had this problem
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Re: loss of bladder sensation...help

Postby AnnieBeansprout » Sat Nov 06, 2010 10:39 pm

Wow, Coff, I have not had that or heard of that in what I've read here.

Maybe someone will come along who has been through it, but in the meantime I think this sounds like something you need to address with your doc. Maybe your GP or gyn too? Either/or/both?

You feel nothing? You just make yourself go in and try because you know you must need to? Are you having any leakage at all?

I'm no doc...just trying to get a feel for what you are going through.
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Re: loss of bladder sensation...help

Postby coffeebreak » Sun Nov 07, 2010 1:47 am

hi Annie, no leakage and no sensation, i do force myself to go only because i havent gone all day by night after all fluid ive had i know i have to go just no sensation to, i have noticed the past few days swelling has been alot dont know if that has anything to do with it, im not burning like if i was coming down with an infection, ive been searching on the boards but found nothing, im hoping its nothing and comes back soon and i have made myself go a few times tonight i dont want to get a bladder infection, ive also wondered if it could have anything to do with the nerves that get damaged during surgery, i see PS on wed if its not better by then ill be asking what could be the cause....
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Re: loss of bladder sensation...help

Postby AnnieBeansprout » Sun Nov 07, 2010 10:22 am

Ugh, I feel for you coffee. I agree that it could be nerves or swelling cutting off nerves maybe. But it seems so odd. I have not heard of it, but nothing really surprises me with this recovery! Wednesday seems so far off though...

What about a call to the doc tomorrow?
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Re: loss of bladder sensation...help

Postby bratcatcher » Sun Nov 07, 2010 12:11 pm

Can I ask, did you have a catheter in for your surgery? and are you producing good amounts of urine when you do go? You say you have no sensation of a full bladder, so can you feel the muscles to go when you are peeing??

The reason I ask these questions is cos Im a midwife, so deal with catheters and surgery fairly often... there is a condition called neurogenic bladder where the nerves from brain to bladder do not signal properly and it will continue to fill despite any pain that you may or may not have. If you think it could be this you could do with going back to your PS asap, as it can cause significant damage to bladder and kidneys... I wouldnt panic, there is a number of things it could be linked to the fluids you recieved in surgery, infection, pain perception etc.. it is more likely to be something simple but definitely worth getting checked out.

Good luck, Brat
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Re: loss of bladder sensation...help

Postby AnnieBeansprout » Sun Nov 07, 2010 12:15 pm

Hi Brat! I have a question as I know nothing about this. What you have described has happened to a few people here, but it has been right away after the catheter was removed. I mean very early.

Could this happen well over a month out from surgery if you did have a catheter?

I am just trying to figure this out, and know nothing about it, and Coffee being almost 6 weeks.
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Re: loss of bladder sensation...help

Postby momma2010 » Sun Nov 07, 2010 12:22 pm

Hi Coffee,
So sorry to hear you are going through this. This was actually one of the questions I asked my PS before surgery because I had this fear. I had this fear because after my third baby was born, I lost all sensation of my bladder. Not only did I not have the urge to go, but I couldn't go at all no matter how much I sat there and tried. My bladder kept getting fuller and fuller and I became very uncomfortable and had cramping but just couldn't go. They had to insert a catheter for about 8 hours and then when they took it out, the urge came back and I was fine. My ob/gyn said that birth can cause trauma to the bladder and that was the cause. So when I asked my PS about trauma to the bladder during surgery, he said it is a very minimal chance but of course this can be a risk of the surgery. It just seems so odd that this is happening to you so long after the surgery. It does seem to me also that it is probably the swelling that may be affecting the nerves. Could you appear to be swelling more because your bladder is fuller than you think? You said you can empty your bladder when you try, but are you going enough you think, or just a little bit? I sure hope this resolves itself on its own and very soon!
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Re: loss of bladder sensation...help

Postby coffeebreak » Sun Nov 07, 2010 1:22 pm

hi Bratt, thanks for the advice, i am going ALOT when i do go and im able i think to use the muscle enough to force the last drop out (i think) i had full sensation since the day after surgery up until a few days ago, but as stated i am swelling alot right now in the ken area as well around to the hip bones, i know the extra swelling is due to me moving around alot more in the past few days and maybe doing alittle too much of coarse in reason, my PS isnt open on the weekends so havent been able to call however i do have a friend that is a nurse and she had mentioned that with the nerves and swelling combined it could just very well be causeing this sensation, as long as i dont have burning, im hoping this self corrects as i get busy and dont think to take myself to the bathroom, i have to remind myself to go, ive been setting the timer on the stove to every 2 hours to remind me its potty break lol,
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Re: loss of bladder sensation...help

Postby bratcatcher » Sun Nov 07, 2010 1:27 pm

Sorry Coffee I didnt realise you were that far out... 6 weeks.. has this been the case since surgery or is it a new thing?? Are you still on any medication?

You say you have been swelling more that usual at the moment and I wonder whether this is causing some swelling near the urethra? I suppose swelling in that area is common (the famous ken doll!!) so there is a chance that this is putting some pressure on the nerves and therefore affecting sensation and contractability of the bladder...

If you have been like this since surgery Id be more inclined to think that there has been some nerve damage during the procedure, as 6 weeks is a bit long in terms of normal post surgery/post catheterisation urinary retention which is normally resolved by 2 weeks in cases where recatheterisation isnt necessary.

As long as you remember to empty regularly thats the most important thing and definitely worth a phone call explaining that you remain having no sensation after a full day of drinking lots... I would say being able to have done that you must have some powerful pelvic floor muscles, cos Id have definitely peed my pants by then!!!
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Re: loss of bladder sensation...help

Postby coffeebreak » Sun Nov 07, 2010 1:27 pm

AnnieBeansprout wrote:Hi Brat! I have a question as I know nothing about this. What you have described has happened to a few people here, but it has been right away after the catheter was removed. I mean very early.

Could this happen well over a month out from surgery if you did have a catheter?

I am just trying to figure this out, and know nothing about it, and Coffee being almost 6 weeks.


Annie, i did ask my friend whos a nurse and she said its a slim slim possibility that this long after surgery it could be from the cathedar but with the trauma to the tummy and organs during this surgery nothing would surprise her either, shes more leaning towards just the swelling and nerves being damaged that possibly the sensation could be temporaily gone, but she couldnt be fully assured of that, so i will call PS tomorrow and ask what could be going on, not something im eager to leave until wed...
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Re: loss of bladder sensation...help

Postby bratcatcher » Sun Nov 07, 2010 1:30 pm

Oh my we are all posting at the same time!! But yes, I think your friend is right :D
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Re: loss of bladder sensation...help

Postby coffeebreak » Sun Nov 07, 2010 3:28 pm

ok ladies your not going to believe what the cause of this may be......my friend spent the weekend contacting colleges and researching, are you ready for this one.....MY BINDER!!!!!! i have been wearring my binder very tight the past few days due to my sneezing fits and how sore the MR is getting from it, i thought by tightening the binder it made me feel more supported for the times i couldnt get to my pillow, with the binder being too tight its not allowing proper circulation thus causing more swelling in the ken area and around hip area, as we all know how gravity works in this operation....i have now losened my binder and will see if the sensation returns.....not to mention i am also wearing the cg as well so maybe alittle too much support in my case ughhhhh im hoping this was the problem well see as the day goes....
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Re: loss of bladder sensation...help

Postby coffeebreak » Mon Nov 08, 2010 8:18 am

spoke to PS office this morning, they agree binder could have had a huge roll in loss of sensation, this morning i felt the need to go to the bathroom however not like i should be feeling, PS said it can happen while nerves are trying to reattach and swelling combined and not to be worried it will self correct, and to just go during the day even if i dont feel the need to avoid bladder infections, so hmmmm i guess well see how i feel as the time goes on....
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Re: loss of bladder sensation...help

Postby AnnieBeansprout » Mon Nov 08, 2010 10:31 am

Please let us know how it goes Coffee. Glad you talked to the PS. I hope this ends for you very soon.
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Re: loss of bladder sensation

Postby lemons2lemonade » Tue Nov 09, 2010 1:02 pm

I have had this problem for a LONG time. I feel it was a result of having three 9 lb+ babies. I asked the doctor if it's something that could be fixed during my full abdominoplasty 5 days ago and they said it couldn't.

THE main point I am here is that it took me a day to realize that when my pain (and it's a different type of pain) got intolerable it was usually because I needed to empty my bladder.

My hunch is in your case it's the swelling and unfortunately from what I understand the swelling will take a while to go completely away so for now sounds like you're best bet is to re-train yourself. You will also soon be able to realize from the pain type that you need to go.
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